KCNT1 Epilepsy Foundation

Founded by parents and backed by science, the organization unites families, researchers, and clinicians to accelerate treatments and provide essential support for those affected by KCNT1-related disorders. Because variants in the KCNT1 gene disrupt how brain cells communicate—causing unpredictable symptoms that range from difficult-to-treat seizures to milder challenges—the group is dedicated to bringing clarity and community to every unique patient journey. By turning awareness into action, they ensure that anyone navigating a KCNT1 diagnosis has a dedicated partner in the fight for faster scientific progress and a better future.

At the KCNT1 Epilepsy Foundation, the heart of its mission is to accelerate treatments and expand understanding across the evolving spectrum of KCNT1-related conditions through collaborative research, clinical readiness, and family empowerment. We are guided by urgency, scientific integrity, and the understanding that progress happens when science, community, and collaboration move forward together.